Management of congenital ichthyoses: European guidelines of care, part two
J. Mazereeuw‐hautier
(1)
,
A. Hernández‐martín
(2)
,
E.A. O'Toole
(3, 4)
,
A. Bygum
(5)
,
C. Amaro
(6)
,
M. Aldwin
(7)
,
A. Audouze
(8)
,
C. Bodemer
(9, 10)
,
E. Bourrat
(9)
,
A. Diociaiuti
(11)
,
M. Dolenc‐voljč
(12)
,
I. Dreyfus
(1)
,
M. El Hachem
(11)
,
J. Fischer
(13)
,
A. Ganemo
(14)
,
C. Gouveia
(15)
,
R. Gruber
(16)
,
S. Hadj‐rabia
(9, 10)
,
D. Hohl
(17)
,
N. Jonca
(18)
,
K. Ezzedine
(19, 20)
,
D. Maier
(21)
,
R. Malhotra
(22)
,
M. Rodriguez
(23)
,
H. Ott
(24)
,
D.G. Paige
(25)
,
A. Pietrzak
(26)
,
F. Poot
,
M. Schmuth
(16)
,
J.C. Sitek
(27)
,
P. Steijlen
(28)
,
G. Wehr
,
M. Moreen
(29, 30)
,
A. Vahlquist
(31)
,
H. Traupe
(32)
,
V. Oji
(32)
1
CHU Toulouse -
Centre Hospitalier Universitaire de Toulouse
2 HIUNJ - Hospital Infantil Universitario Niño Jesús
3 QMUL - Queen Mary University of London
4 Bart's and The London School of Medicine and Dentistry
5 OUH - Odense University Hospital
6 Hospital de Santa Maria [Lisboa]
7 Ichthyosis Support Group, PO Box 1242, Yateley, GU47 7FL, U.K.
8 Association Ichtyose France, Bellerive sur Allier, France.
9 Service de dermatologie [CHU Necker]
10 IMAGINE - U1163 - Imagine - Institut des maladies génétiques
11 IRCCS Ospedale Pediatrico Bambino Gesù = Bambino Gesù Children’s Hospital
12 UMCL - University Medical Centre Ljubljana [Ljubljana, Slovenia]
13 University of Freiburg [Freiburg]
14 Skane University Hospital [Malmo]
15 Inselspital - Bern University Hospital [Berne]
16 Leopold Franzens Universität Innsbruck - University of Innsbruck
17 CHUV - Centre Hospitalier Universitaire Vaudois = Lausanne University Hospital [Lausanne]
18 UDEAR - Unité différenciation épidermique et auto-immunité rhumatoïde
19 Hôpital Henri Mondor
20 EpiDermE - Epidemiology in Dermatology and Evaluation in Therapeutics
21 UMF - Iuliu Haţieganu University of Medicine and Pharmacy of Cluj-Napoca = Universitatea de Medicină şi Farmacie Iuliu Haţieganu din Cluj-Napoca
22 Queen Victoria Hospital NHS Foundation Trust
23 Hospital Universitario Son Espases
24 Children's Hospital "Auf der Bult"
25 Royal Free Hospital [London, UK]
26 Medical University of Lublin
27 Oslo University Hospital [Oslo]
28 MUMC - Maastricht University Medical Centre
29 University Hospitals Leuven [Leuven]
30 KU Leuven - Catholic University of Leuven = Katholieke Universiteit Leuven
31 Uppsala University
32 UKM - University Hospital Münster - Universitaetsklinikum Muenster [Germany]
2 HIUNJ - Hospital Infantil Universitario Niño Jesús
3 QMUL - Queen Mary University of London
4 Bart's and The London School of Medicine and Dentistry
5 OUH - Odense University Hospital
6 Hospital de Santa Maria [Lisboa]
7 Ichthyosis Support Group, PO Box 1242, Yateley, GU47 7FL, U.K.
8 Association Ichtyose France, Bellerive sur Allier, France.
9 Service de dermatologie [CHU Necker]
10 IMAGINE - U1163 - Imagine - Institut des maladies génétiques
11 IRCCS Ospedale Pediatrico Bambino Gesù = Bambino Gesù Children’s Hospital
12 UMCL - University Medical Centre Ljubljana [Ljubljana, Slovenia]
13 University of Freiburg [Freiburg]
14 Skane University Hospital [Malmo]
15 Inselspital - Bern University Hospital [Berne]
16 Leopold Franzens Universität Innsbruck - University of Innsbruck
17 CHUV - Centre Hospitalier Universitaire Vaudois = Lausanne University Hospital [Lausanne]
18 UDEAR - Unité différenciation épidermique et auto-immunité rhumatoïde
19 Hôpital Henri Mondor
20 EpiDermE - Epidemiology in Dermatology and Evaluation in Therapeutics
21 UMF - Iuliu Haţieganu University of Medicine and Pharmacy of Cluj-Napoca = Universitatea de Medicină şi Farmacie Iuliu Haţieganu din Cluj-Napoca
22 Queen Victoria Hospital NHS Foundation Trust
23 Hospital Universitario Son Espases
24 Children's Hospital "Auf der Bult"
25 Royal Free Hospital [London, UK]
26 Medical University of Lublin
27 Oslo University Hospital [Oslo]
28 MUMC - Maastricht University Medical Centre
29 University Hospitals Leuven [Leuven]
30 KU Leuven - Catholic University of Leuven = Katholieke Universiteit Leuven
31 Uppsala University
32 UKM - University Hospital Münster - Universitaetsklinikum Muenster [Germany]
J. Mazereeuw‐hautier
- Fonction : Auteur
- PersonId : 800376
- ORCID : 0000-0001-6259-9790
- IdRef : 069417865
A. Hernández‐martín
- Fonction : Auteur
- PersonId : 808767
- ORCID : 0000-0001-7260-8718
C. Bodemer
- Fonction : Auteur
- PersonId : 1255159
- ORCID : 0000-0001-8772-0905
- IdRef : 05954158X
M. El Hachem
- Fonction : Auteur
- PersonId : 821250
- ORCID : 0000-0002-8145-4797
S. Hadj‐rabia
- Fonction : Auteur
- PersonId : 794661
- ORCID : 0000-0001-6801-7106
N. Jonca
- Fonction : Auteur
- PersonId : 1166177
- ORCID : 0000-0003-3602-0102
- IdRef : 187848793
F. Poot
- Fonction : Auteur
G. Wehr
- Fonction : Auteur
Résumé
These guidelines for the management of congenital ichthyoses have been developed by a multidisciplinary group of European experts following a systematic review of the current literature, an expert conference held in Toulouse in 2016, and a consensus on the discussions. These guidelines summarize evidence and expert-based recommendations and intend to help clinicians with the management of these rare and often complex diseases. These guidelines comprise two sections. This is part two, covering the management of complications and the particularities of some forms of congenital ichthyosis.