Article Dans Une Revue Alzheimer Disease & Associated Disorders Année : 2025

Feasibility and Acceptability of a Virtual “Dementia Awareness for Caregivers” Course in Brazil and India

Emily Fisher
  • Fonction : Auteur
Nirupama Natarajan
  • Fonction : Auteur
Esther Hui
  • Fonction : Auteur
Shreenila Venkatesan
  • Fonction : Auteur
Sridhar Vaitheswaran
  • Fonction : Auteur
Monisha Laksminarayanan
  • Fonction : Auteur
Paula Schimidt Brum
  • Fonction : Auteur
Renata Naylor-Batista
  • Fonction : Auteur
Daniel Mograbi
  • Fonction : Auteur
Cleusa Ferri
  • Fonction : Auteur
Charlotte Stoner
  • Fonction : Auteur
Aimee Spector
  • Fonction : Auteur

Résumé

Objective: To establish whether a virtual dementia awareness course is feasible for caregivers of people with dementia in Brazil and India. Methods: A pre/posttest single group, multisite feasibility study, mixed methods exploratory design was applied. Primary caregivers of people with dementia in Brazil and India took a 3 to 4-hour course adapted for online delivery, with 10 to 15 caregivers. Measurements encompassed self-reports of carer competence, attitudes to dementia, and caregiver burden; satisfaction questionnaire completed immediately after the intervention; open-ended questions at 1-month follow-up to assess if caregivers applied information to caregiving role; semistructured interviews about how the intervention changed caregivers’ behavior and attitudes towards dementia. Results: Of the 70 caregivers who received the intervention (Brazil = 34; India = 36), 54 (77.1%) completed postintervention outcomes, and 39 (55.7%) completed questionnaires at 1-month follow-up assessment. Significant improvements were observed in attitudes to dementia in both countries and self-perceived carer competence (in India) postintervention. The themes from the 9 semistructured interviews were: acceptability, feasibility, change of behavior/attitude, and suggestions for future sessions. Conclusions: Dementia awareness course was a feasible online intervention to improve dementia awareness among family caregivers across countries. It offers a standardized yet flexible methodology, with promising outcomes that need to be evaluated in a full randomized controlled trial.

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Dates et versions

hal-04963690 , version 1 (24-02-2025)

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Raquel Luiza Santos de Carvalho, Emily Fisher, Nirupama Natarajan, Esther Hui, Shreenila Venkatesan, et al.. Feasibility and Acceptability of a Virtual “Dementia Awareness for Caregivers” Course in Brazil and India. Alzheimer Disease & Associated Disorders, 2025, 39 (1), pp.51-59. ⟨10.1097/WAD.0000000000000659⟩. ⟨hal-04963690⟩
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